Last month, Wollert father Steve Trowbridge completed a grueling 700-kilometre interstate run over 11 days, raising more than $30,000 for a cause that means the world to him.
He undertook one of the “toughest” challenges of his life for his four-year-old son, Levi, who has a rare genetic condition called KCNQ2 Early Infantile Encephalopathy.
The condition is an alteration of the genes and effects Levi in all aspects of his life.
Levi is one of around 1000 kids worldwide to be diagnosed with the condition, and with no cure available yet, the money raised by Mr Trowbridge could help fund a potential breakthrough.
“I’m not a superhuman dad, I’m just a parent that is trying to do the best for their kid and that involves trying to raise much needed funds so the KCNQ2 foundation can fast track some research,” he said.
“It was a really hard journey but knowing the reason behind why I was running got me through each and every day.
“Putting my body through 11 days of pain is nothing compared to what Levi has experienced in his short life.”
Mr Trowbridge’s run from Adelaide to Melbourne was the culmination of a five-month fundraising campaign for the foundation — with $32,000 raised, he is close to reaching his goal.
“We wanted to raise $40,000 and if we achieve that then as a family, we would have donated more than a $100,000 for the organisation and that’s amazing,” he said.
“We have had over 190 people donate and we wouldn’t have gotten this far without their support, we’re so grateful.
“Every donation goes a long way, even if it’s five dollars, it makes a difference and we’re hopeful with all this capital, a cure is found in the coming years.
“I can’t think of a life without Levi and so we’re pushing for this with all we’ve got.”
To support the Mr Trowbridge’s fundraising efforts, which will conclude at Christmas, visit: shorturl.at/94ujb
